Tag: Zika

Bioethics News

Berman Institute Bioethics Bulletin

Berman Institute Bioethics BulletinBerman Institute Bioethics BulletinVirus Hunters Map Zika’s Spread with DNAHow to End a LifeUsers’ Guide to Integrating Patient-Reported Outcomes in Electronic Health RecordsWhen the Patient Is a Gold Mine: The Trouble With Rare-Disease DrugsGraduation 2017The Messy Relationship Between Food Stamps and HealthPutting A Lid On WasteCuts to AIDS Treatment Programs Could Cost a Million LivesMedicine Is Going Digital. The FDA Is Racing to Catch UpWorld Health Organization Elects a New Director General from Ethiopia

Warning: session_start() [function.session-start]: open(/home/content/45/6105545/tmp/sess_rbuk6hfi0kmvrqcui02jrcfvb5, O_RDWR) failed: No such file or directory (2) in /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php on line 21

Warning: session_start() [function.session-start]: Cannot send session cookie – headers already sent by (output started at /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php:21) in /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php on line 21

Warning: session_start() [function.session-start]: Cannot send session cache limiter – headers already sent (output started at /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php:21) in /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php on line 21

Warning: Cannot modify header information – headers already sent by (output started at /home/content/45/6105545/html/wp-content/plugins/magic-fields/MF_ManageWritePanels.php:21) in /home/content/45/6105545/html/wp-includes/feed-rss2.php on line 8
http://bioethicsbulletin.org Bioethics News & Analysis from Johns Hopkins Thu, 25 May 2017 15:02:27 +0000 en-US hourly 1 https://wordpress.org/?v=4.7.5 http://bioethicsbulletin.org/wp-content/uploads/2016/08/cropped-faviconBI-32×32.png http://bioethicsbulletin.org 32 32 http://bioethicsbulletin.org/archive/virus-hunters-map-zikas-spread-with-dna http://bioethicsbulletin.org/archive/virus-hunters-map-zikas-spread-with-dna#respond Thu, 25 May 2017 15:02:27 +0000

http://bioethicsbulletin.org/?p=36260

http://bioethicsbulletin.org/archive/virus-hunters-map-zikas-spread-with-dna/feed 0 http://bioethicsbulletin.org/archive/how-to-end-a-life http://bioethicsbulletin.org/archive/how-to-end-a-life#respond Thu, 25 May 2017 14:57:23 +0000

http://bioethicsbulletin.org/?p=36258

http://bioethicsbulletin.org/archive/how-to-end-a-life/feed 0 http://bioethicsbulletin.org/archive/users-guide-to-integrating-patient-reported-outcomes-in-electronic-health-records http://bioethicsbulletin.org/archive/users-guide-to-integrating-patient-reported-outcomes-in-electronic-health-records#respond Thu, 25 May 2017 14:47:49 +0000

http://bioethicsbulletin.org/?p=36256

http://bioethicsbulletin.org/archive/users-guide-to-integrating-patient-reported-outcomes-in-electronic-health-records/feed 0 http://bioethicsbulletin.org/archive/when-the-patient-is-a-gold-mine-the-trouble-with-rare-disease-drugs http://bioethicsbulletin.org/archive/when-the-patient-is-a-gold-mine-the-trouble-with-rare-disease-drugs#respond Thu, 25 May 2017 14:18:45 +0000

http://bioethicsbulletin.org/?p=36254

http://bioethicsbulletin.org/archive/when-the-patient-is-a-gold-mine-the-trouble-with-rare-disease-drugs/feed 0 http://bioethicsbulletin.org/archive/graduation-2017 http://bioethicsbulletin.org/archive/graduation-2017#respond Wed, 24 May 2017 20:25:49 +0000

http://bioethicsbulletin.org/?p=36250

http://bioethicsbulletin.org/archive/graduation-2017/feed 0 http://bioethicsbulletin.org/archive/the-messy-relationship-between-food-stamps-and-health http://bioethicsbulletin.org/archive/the-messy-relationship-between-food-stamps-and-health#respond Wed, 24 May 2017 15:12:48 +0000

http://bioethicsbulletin.org/?p=36189

http://bioethicsbulletin.org/archive/the-messy-relationship-between-food-stamps-and-health/feed 0 http://bioethicsbulletin.org/archive/putting-a-lid-on-waste http://bioethicsbulletin.org/archive/putting-a-lid-on-waste#respond Wed, 24 May 2017 14:50:39 +0000

http://bioethicsbulletin.org/?p=36187

http://bioethicsbulletin.org/archive/putting-a-lid-on-waste/feed 0 http://bioethicsbulletin.org/archive/cuts-to-aids-treatment-programs-could-cost-a-million-lives http://bioethicsbulletin.org/archive/cuts-to-aids-treatment-programs-could-cost-a-million-lives#respond Wed, 24 May 2017 14:45:07 +0000

http://bioethicsbulletin.org/?p=36185

http://bioethicsbulletin.org/archive/cuts-to-aids-treatment-programs-could-cost-a-million-lives/feed 0 http://bioethicsbulletin.org/archive/medicine-is-going-digital-the-fda-is-racing-to-catch-up http://bioethicsbulletin.org/archive/medicine-is-going-digital-the-fda-is-racing-to-catch-up#respond Wed, 24 May 2017 13:43:17 +0000

http://bioethicsbulletin.org/?p=36183

http://bioethicsbulletin.org/archive/medicine-is-going-digital-the-fda-is-racing-to-catch-up/feed 0 http://bioethicsbulletin.org/archive/world-health-organization-elects-a-new-director-general-from-ethiopia http://bioethicsbulletin.org/archive/world-health-organization-elects-a-new-director-general-from-ethiopia#respond Tue, 23 May 2017 19:20:16 +0000

http://bioethicsbulletin.org/?p=36181

http://bioethicsbulletin.org/archive/world-health-organization-elects-a-new-director-general-from-ethiopia/feed 0
Warning: Unknown: open(/home/content/45/6105545/tmp/sess_rbuk6hfi0kmvrqcui02jrcfvb5, O_RDWR) failed: No such file or directory (2) in Unknown on line 0

Warning: Unknown: Failed to write session data (files).

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics News

Virus Hunters Map Zika’s Spread with DNA

According to new genetic evidence published today, public health efforts to contain and fight the disease could have—and should have—gotten underway much sooner. Zika, it turns out, had established itself in Brazil as early as 2013

Source: Bioethics Bulletin by the Berman Institute of Bioethics.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics Blogs

Dear Mr. President: It’s Time for Your Bioethics Commission

by Craig Klugman, Ph.D.

Last week, seven Democratic members of the U.S. House Representatives sent a letter to the White House asking President Trump to appoint a director to the Office of Science and Technology Policy (OSTP), position that normally serves as the presidential science advisor. The impetus for writing the letter was a communication from the Deputy National Science Advisor that two hoax reports, that tried to undermine climate change, were circulating through the West Wing as “science.” The Congresspersons state “Where scientific policy is concerned, the White House should make use of the latest, most broadly-supported science…Relying on factual technical and scientific data has helped make America the greatest nation in the world.” Among the signers are a PhD in math and a PhD in physics. They hold that the U.S. faces strong questions that revolve around science, both opportunities and threats, and the need for a scientist who can understand and explain the importance of objective fact to the chief executive is essential.

This article led me to think that the U.S. also faces a lot of issues regarding health and medicine and their impact on society. Consider the task of creating a new health plan, CRISPR/CAS-9, in vitro gametogenesis, the threat of Zika, extra uterine gestational systems, legalized marijuana, digital medicine—pharmaceutical computing for treating disease, head transplants, and DYI science are among the bioethical issues that will effect policy in the coming few years. Thus, it is time for President Trump to call for his Presidential Bioethics Commission.

The last bioethics advisory body ended in January 2017, although many of the staff are still winding down the office and archiving the many reports and papers produced.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics Blogs

Silence = Death

May 18, 2017

by Sean Philpott-Jones, Chair, Bioethics Program of Clarkson University & Icahn School of Medicine at Mount Sinai

Silence = Death

As Donald Trump fights for his political life following new revelations about wholly inappropriate disclosure of classified materials and potential obstruction of justice, he has quietly issued new orders that will condemn thousands of women and children around the world to death.

Largely overlooked given the media frenzy about the appointment of a special prosecutor to investigate Russian interference in the US Presidential election was an announcement that the TrumpAdministration will vastly expand the scope of the “Global Gag Rule”, the international anti-abortion policy first enacted by Ronald Reagan in 1984.

Also known as the Mexico City Policy, the rule prohibits organizations that receive family planning money from the United States Agency for International Development (USAID) from providing or promoting abortion. This is true even if they do so with private money. In fact, if they take so much as a single dollar from the US, they can’t even mention the word ‘abortion’ regardless of whether or not these organizations actually provide such services.

Every time a Democrat is in the White House, the global gag rule is rescinded. Every time a Republican enters the Oval Office, it is reinstated. President Trump himself did so just three days after assuming office. Until now, family planning organizations around the world have largely learned to deal with this ebb-and-flow. That is all about to change.

On Monday, Trump announced a new policy called Protecting Life in Global Health Assistance. That policy expands the scope of the Global Gag Rule.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics Blogs

40th Annual Health Law Professors Conference

If you teach health law, come to the 40th Annual Health Law Professors Conference, June 8-10, 2017, at Georgia State University College of Law in Atlanta.  Here is the schedule:


Thursday, June 8, 2017
8:00-12:00 AM Tour of the Centers for Disease Control and Prevention (Separate registration is required. Participants meet in the lobby of Georgia State Law to take a shuttle to the CDC.)


9:45 – 11:15 AM Tour of Grady Health System (Separate registration is required. Participants meet in the lobby of Georgia State Law and will walk over to Grady as a group.)


2:00 – 5:00 PM Conference Registration – Henson Atrium, Georgia State Law


3:00 – 5:00 PM Jay Healey Teaching Session – Knowles Conference Center, Georgia State Law
Experiential Teaching and Learning in Health Law
The format for this session is World Café roundtables, with plenty of opportunity for the collegial exchange of teaching ideas and insights among your colleagues. Come prepared for a lively, interactive workshop.
World Café Hosts:
Dayna Matthew, University of Colorado Law School
Charity Scott, Georgia State University College of Law
Sidney Watson, Saint Louis University School of Law
Invited Discussants and Participants:
Rodney Adams, Virginia Commonwealth University School of Health Administration
Christina Juris Bennett, University of Oklahoma College of Law
Amy Campbell, University of Memphis Cecil C. Humphreys School of Law
Michael Campbell, Villanova University Charles Widger School of Law
Erin Fuse Brown, Georgia State University College of Law
Cynthia Ho, Loyola University of Chicago School of Law
Danielle Pelfrey Duryea, University of Buffalo School of Law, State University of New York
Jennifer Mantel, University of Houston Law Center
Elizabeth McCuskey, University of Toledo College of Law
Laura McNally-Levine, Case Western Reserve University School of Law
Jennifer Oliva, West Virginia University College of Law and School of Public Health
Thaddeus Pope, Mitchell Hamline School of Law
Lauren Roth, St.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics Blogs

Individually-randomized controlled trials of vaccines against the next outbreak

Guest Post: Nir Eyal, Marc Lipsitch

Paper: Vaccine testing for emerging infections: the case for individual randomisation 

The humbling experience of international response to Ebola taught the world a thing or two on preparing for Zika and for other emerging infections.

Some of those lessons pertain to vaccine development against emerging infections. One lesson was that vigorous vaccine development should start long in advance of outbreaks. CEPI, the Coalition for Epidemic Preparedness Innovations, was recently launched with an initial investment of half a billion US dollars from the Gates Foundation, Britain’s Wellcome Trust and the governments of Japan, Norway and Germany. There is also growing recognition that best practices on vaccine testing should be developed prior to outbreaks, from a study methodology viewpoint.

By contrast, in Zika, ethical guidelines on response in general and on an aspect of vaccine testing were created only once the pandemic erupted. Shouldn’t ethical disputes, e.g. on trial design for vaccine candidates, be ironed out in advance of emerging infections?

One persistent ethical question in vaccine testing pertains to individually-randomized control in efficacy trials. At the height of the 2014-5 Ebola outbreak, individually-randomized controlled trials were much maligned. Our paper at the Journal of Medical Ethics sets out to defend that approach for vaccine efficacy testing in emerging infections, including highly fatal and untreatable ones in developing countries.

Nearly everyone agrees that scientifically, individually-randomized controlled trials are the gold standard of clinical research. But during the Ebola outbreak, ethicists, leaders, and humanitarian workers opposed them. For testing vaccine against a highly fatal infection without approved drugs or vaccines, they deemed these designs unethical.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics News

Jeff Kahn on WYPR Midday

 

Jeffrey Kahn, PhD, MPH,  Andreas C. Dracopoulos Director of the Johns Hopkins Berman Institute of Bioethics, appears regularly on WYPR’s Midday show with Tom Hall to discuss pressing ethics issues related to current scientific and technological advances.

 

His next appearance will be Wednesday, April 5th at noon. (Listen live online) Prof. Kahn and Tom Hall will discuss the case of Henrietta Lacks, the poor black tobacco farmer who died of cancer in 1951, and whose cancer cells were taken for research without her or her family’s permission – Ms. Lacks is also the subject of a new film, The Immortal Life of Henrietta Lacks, debuting on HBO Saturday, April 22nd at 8pm

 

Here is an archive of Prof. Kahn’s appearances on Midday with Tom Hall:

 


New Report Sets Guidelines for Genome Editing

February 15, 2017

Genome editing, that is the ability to make additions, deletions, and alterations to the genome of a human or animal, is not a new. Scientists have been experimenting with it in labs for a while to better understand the way some diseases and disabilities work. But now a new report released yesterday from the National Academy of Sciences and the National Academy of Medicine sets international guidelines for genome editing. New editing tools like CRISPR have opened up the doors for more lab and clinical research projects. The scientists behind the report hope their guidelines will serve as a roadmap to help other scientists avoid the ethical concerns associated with gene editing.

 

Bioethics With Dr.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics News

Why Didn’t Zika Cause A Surge In Microcephaly In 2016?

Scientists quickly concluded the Zika virus was the culprit. So when Zika returned last year during Brazil’s summer months of December, January and February — when mosquitoes are most active — health officials expected another surge in microcephaly cases. But that never happened

Source: Bioethics Bulletin by the Berman Institute of Bioethics.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Bioethics News

The Game-Changing Technique That Cracked the Zika-Mosquito Genome

“Hi-C” will make it much easier and cheaper to assemble all of an organism’s genetic material from scratch

Source: Bioethics Bulletin by the Berman Institute of Bioethics.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.