In an era of increased interest in precision medicine, it is becoming all the more critical to develop an adequate supply of biospecimens and data for research. The Bioethics Research Library of the Kennedy Institute of Ethics at Georgetown University is hosting this annotated bibliography to contextualize the motivation, expectations, and concerns of biospecimen donors which was developed by Heide Aungst from the Department of Bioethics at Case Western University in 2015.
We have made it available here for researchers to use. Download the excel file to access the full dataset.
This project was funded by an NIH grant from the National Human Genome Research Institute.