Bioethics News

Genetics Labs Hoarding Cancer Patient Data

July 19, 2016

(Newsweek) – Frustrated, Deutsch became involved in a new complaint that pits one of the biggest names in genetics against an at-risk group it’s supposed to be helping. On May 19, the American Civil Liberties Union (ACLU) filed the complaint against Myriad to the Department of Health and Human Services (HHS), accusing the Utah-based company of failing to release data from its analyses even after patients requested it, a violation of their rights under the Health Insurance Portability and Accountability Act (HIPAA).

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