Bioethics Blog Posts Tagged researchers

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User Beware: Privacy Settings just a Facade

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Source: Ethics & Society, blog of the Fordham University Center for Ethics Education.

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By Brenda Curtis, Ph.D.

Social media platforms continue to improve and refine their privacy settings as the demand for advanced user protections increases. Although enabling catered privacy settings to online profiles allows users to indicate who they would like share personal information with, it does not necessarily protect them from the platforms – i.e. websites and apps – themselves. Since social media accounts provide users with a sense of control over personal data, users assume that their information is safe. However, no matter what settings or privacy protections are applied to personal profiles, users do not generally have control over the online platform itself. What this means is the website or app being used usually shares information from accounts with third parties like advertising agencies or other databases. This data sharing is widespread throughout the industry, but it is not generally known by the public. This is partly because the disclosure of this sharing is done in the social media platform’s “Terms and Conditions” Which are often skimmed over or ignored.

Aside from social media websites, there are several other websites and apps that access your personal information via this information sharing to create a single database for everyone in the country. This is generally called data aggregation. One such site that has been in the news recently is FamilyTreeNow.  FamilyTreeNow is explicitly a genealogy site, and compiles information from various legal online sources to create a database full of personal information for genealogical research.

Read more at ethicsandsociety.org
The views, opinions and positions expressed by these authors / blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.

Brain Scans Show Early Signs of Autism Spectrum Disorder

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Source: National Institutes of Health Director's Blog.

Excerpt:

Source: Getty Images

For children with autism spectrum disorder (ASD), early diagnosis is critical to allow for possible interventions at a time when the brain is most amenable to change. But that’s been tough to implement for a simple reason: the symptoms of ASD, such as communication difficulties, social deficits, and repetitive behaviors, often do not show up until a child turns 2 or even 3 years old.

Now, an NIH-funded research team has news that may pave the way for earlier detection of ASD. The key is to shift the diagnostic focus from how kids act to how their brains grow. In their brain imaging study, the researchers found that, compared to other children, youngsters with ASD showed unusually rapid brain growth from infancy to age 2. In fact, the growth differences were already evident by their first birthdays, well before autistic behaviors typically emerge.

Autism spectrum disorder includes a range of developmental conditions, such as autism and Asperger syndrome, that are characterized by challenges in social skills and communication. Scientists have long known that teens and adults with ASD have unusually large brain volumes. Researchers, including Heather Hazlett and Joseph Piven of the University of North Carolina, Chapel Hill, found more than a decade ago that those differences in brain size emerge by about age 2 [1]. However, no one had ever visually tracked those developmental differences.

In the new study reported in Nature [2], Hazlett, Piven, and their colleagues set out to collect that visual evidence.

Read more at directorsblog.nih.gov
The views, opinions and positions expressed by these authors / blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.