This page lists the complete archival collections held by the Bioethics Research Library. Selected materials from archival collections are available by request for Georgetown University researchers to examine in the Bioethics Research Library. Many archival collections include finding aids or box listings to assist with identifying materials to select for retrieval. Other collections may include fully digitized reports or documents available for free through DigitalGeorgetown. Documents from the archives may also be requested for digitization on demand. A fee may be assessed to the researcher for time spent identifying, retrieving, and scanning the document. You may now schedule an appointment to view archival materials. Please contact Nat Norton, M.A.L.S., Archives and Digital Technician, for assistance.
Rihito Kimura, Ph.D.: “I was very happy to study the documents from the “Robert Cook-Deegan Human Genome Project Archive” at the Kennedy Institute of Ethics. The collection includes important correspondence with researchers in Japan as well as original pamphlets/documents in Japanese. These documents were invaluable to my research on human genome initiative in Japan. A special thank you to Martina and Nat, KIE Librarians who were extremely helpful in locating and preparing the documents.”
The National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, 1974-1978
In the early history of bioethics, the Executive Branch’s Department of Health, Education and Welfare established the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. The archive encompasses 43 meetings from 1974-1978 and includes briefing books, subject files, and transcripts from these meetings.
Ethics Advisory Board (EAB), 1978-1979
This group began in 1978 under the auspices of the Department of Health, Education and Welfare. Its pronouncement on human embryo research in 1979, followed by the EAB dissolution, began a 15-year moratorium on such research.
1978 – 1979 * 1.66 linear feet * Report
President’s Commission for the Study of Ethical Problems in Medicine and in Biomedical and Behavioral Research, 1978-1983
This congressionally mandated group was formed in 1978, succeeding the National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research. It worked independently from January 1980 to March 1983. The archive encompasses 28 meetings held between 1980 and 1983 and includes briefing books, subject files, and transcripts from these meetings.
Human Fetal Tissue Transplantation Research Panel, 1988
The National Institutes of Health created this advisory panel to deliberate over federal support of therapeutic transplantation research using human tissue obtained from aborted fetuses. The group existed from the spring to the fall of 1988. Its report recommended continuing the funding for such research if guidelines were established to keep abortion separate from the research. Despite the recommendation, the moratorium on such research was extended from a temporary one to an indefinite one.
1998 * 0.42 linear feet * Report
Advisory Committee on Human Radiation Experiments, 1994-1995
Created in January 1994 and dissolved in October 1995, the 14-member committee was charged with investigating and reporting on the use of human beings as subjects of federally funded research using ionizing radiation. To maximize public access as required under the Federal Advisory Committee Act, the committee created for the first time a gopher site on the World Wide Web, which is now under the National Security Agency Archives.
National Bioethics Advisory Commission (NBAC), 1996-2001
The National Bioethics Advisory Commission was established by Executive Order 12975. The purpose of the Commission was to provide advice and make recommendations to the National Science and Technology Council and other appropriate government agencies. The archive contains materials for every year of the commission’s existence and maintains the official website of the commission as it appeared on the last day of the commission’s charter, October 3, 2001.
The President’s Council on Bioethics (PCBE), 2001 -2009
The President’s Council on Bioethics was established by Executive Order 13237 and was charged with advising the President on bioethical issues that may emerge as a consequence of advances in biomedical science and technology. The archive holds materials and reports from every year of the council and maintains the official website as it appeared on the last day of the council’s charter, September 30, 2009.
The Edmund D. Pellegrino Manuscript Archive, 1957-2013
The manuscript archive of Edmund D. Pellegrino, M.D., (1921-2013) contains over 600 scholarly journal articles (including reprints, pre-publication drafts, and original journal volumes), monographs, reports, conference proceedings, speeches, original books with book chapters and introductions to bioethics texts and collections written by Dr. Pellegrino. The Pellegrino archive includes translations of his work published in Italian and Spanish.
The Edmund D. Pellegrino Ephemera Archival Collection, 1957-2013
The Ephemera Archival Collection of Edmund D. Pellegrino, M.D., (1921-2013) contains personal papers, awards, correspondence, press clippings, and other materials that span the career of Dr. Pellegrino.
1957 – 2013
The Robert Cook-Deegan Human Genome Archive, 1986-1994
The Robert Cook-Deegan Human Genome Archive is founded on the bibliography of The Gene Wars: Science, Politics, and the Human Genome. The archive encompasses both physical and digital materials related to The Human Genome Project (HGP) and includes correspondence, government reports, background information, and oral histories from prominent participants in the project.
Bioethics Audiovisual Archival Collection, (1931-Present)
The Bioethics Research Library’s collection of 739 audiovisual materials, which are mostly on VHS and DVD, covers a range of topics in the field of bioethics. This collection holds a diverse set of resources including major Hollywood motion pictures, independent films, news features, and documentaries. Patrons can use this collection to create common experiences for viewers, bring diverse and wide-ranging life stories and ethical questions into the classroom, and harness additional expertise on topics and issues in bioethics.
1931 – Present * 26.25 linear feet * Finding Aid
Bioethics Gray Literature Archival Collection, 1975-2006
Print archive for the BIOETHICSLINE database developed and maintained by the Kennedy Institute of Ethics for the National Library of Medicine from 1975 to 2000 and for the PubMed indexing project generated by National Reference Center for Bioethics Literature bibliographers from 2000 – 2006. This archive contains gray literature, journal articles, law reviews, court decisions, and news articles. Many of the gray literature documents have not been digitized and thus are not available via the Web. Examples of such categories include secondary school teaching materials, sociological and theological works, theses and dissertations, and literature from societies and institutions.
1975 – 2006 * 66.00 linear feet
Bioethics Newsletters Archival Collection, 1971-Present
In addition to regular journal subscriptions, the Bioethics Research Library since its inception has actively sought to collect newsletters, bulletins, and other publications produced by organizations covering bioethical issues. This archive compromises more than 40 years of these publications, many of which have never been digitized.
Acadia Institute Bioethics Interview Collection, 1997-2000
This collection contains transcripts of interviews by Renée C. Fox and Judith P. Swazey based on a series of interviews Fox and Swazey conducted with a number of well-known bioethicists. The interviews served as the backbone of their book, Observing Bioethics. These transcripts are now available digitally for anyone interested in the history of bioethics.
1997 – 2000 * 1.67 linear feet * Digital Collection
Bioethics Syllabus Exchange Repository Digital Collection, 1985-Present
Since 1985, the Syllabus Exchange Repository at the Bioethics Research Library has functioned as a clearinghouse for bioethics syllabi to promote the study of bioethics as a discipline. The collection consists of over 600 syllabi in three languages from 12 countries. While the standard course syllabus documents a semester-length class, seminars and continuing education courses are included as well. The collection contains courses from high school through graduate education.
1985 – Present * Digital Collection
Bioethical Issues: Scope Notes Archive, 1982-2003
To promote research in the interdisciplinary field of bioethics, the Bioethics Research Library produced a series of 47 Scope Notes – annotated bibliographies with introductory essays – to provide a range of opinions on bioethical issues. They offered immediate reference to facts, opinion, and legal precedents (if applicable) for scholars, journalists, medical and legal practitioners, students, and other interested persons. Scope Notes 17, 22, 24, and 28 were updated in July 2011 as part of the library’s National Information Resource on Ethics and Human Genetics preservation project.
1985 – 2003 * 0.42 Linear feet * Digital Collection
Additional Archival Collections Held by the BRL:
The papers of Father Baumiller
The papers of Bradford Gray
12.08 linear feet
National Endowment for the Humanities Seminars
3.75 linear feet
New Jersey Bioethics Commission
0.83 linear feet
Audio Recordings from the Kennedy Institute of Ethics’ Intensive Bioethics Course (1986-2004), the Brenan Lecture Series, and other Special Events
Last updated on November 9, 2015.
We have another new collection to introduce you to today. This week we’ll be exploring the Ethics and Intellectual Disability newsletter and learn a bit about its inception and the impact it made during its run.
Since the founding of the Kennedy Institute of Ethics, there has been a real desire to ensure information was distributed as widely as possible. It was part of the foundation of the creation of the Bioethics Research Library and also a mission of the original scholars of the Institute. In 1972, just a year or so after being founded, an idea was bandied among the Institute’s scholars and those in the field of bioethics that would take another 6 years to complete, but when it was finally published created a legacy all of its own.
Often we are asked, “What collection gets used the most?”, or, “Is the one collection that is most popular?” The answer can vary depending on which person you ask the question, but when we are simply talking about the archives there is always the same answer: The United States bioethics commissions.
It is always an awesome week when the annual conference of the America Society for Bioethics and Humanities (ASBH) kicks off, but this week is made even more special because the Bioethics Research Library in conjunction with ASBH has a new digital collection to reveal!
As part of the ongoing mission to digitize and preserve the evolution and history of the field of bioethics the Bioethics Research Library reached out to the American Society for Bioethics and Humanities to inquire whether they would be amenable to allowing the BRL to digitize the reports of the Institute on Human Values in Medicine (IHVM). The IHVM, between 1971 and 1981, produced 17 reports dealing with the practice and theory of reintegrating humanities teaching into medical education. Yes, you read that right; way back in 1971 the idea that humanities subject matter being taught to professions outside of the humanities was a good idea was being discussed and the IHVM was leading the charge! It is kind of funny that something we are discussing with great effect today was being discussed more than 40 years ago!
While we often focus on the individual and especially our Georgetown undergraduates, the Bioethics Research Library has spent years developing resources for specific groups of patrons. This week we want to focus a bit on one of the groups: educators. Join us as we explore the resources available to those who teach bioethics.
Every wondered where to start your bioethics research? Have you run out of time, but still need a few more sources for your latest paper? When the weather outside is frightful, but the deadline hasn’t been extended you can still take advantage of the Bioethics Research Library’s online resources!
What is in that collection? You mean there’s more? Wait, only some of it available? When working in an archive the questions are endless, but it always comes back to how to access the materials. It can be really confusing and oftentimes leaves students and researchers asking why. Why are some documents are digitized and others are not. Why some documents can only be viewed digitally and not physically. Even why some documents are not available at all!