July 10, 2017 |
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The 11-month-old boy is battling mitochondrial depletion syndrome, a rare genetic disease that affects his energy production and respiration, and the court was expected to decide whether the wishes of Charlie’s parents to pursue an experimental treatment will be granted.
Flanked by supporters of their cause, Yates and Gard spoke Sunday outside London’s Great Ormond Street Hospital, where Charlie has been kept since November.
They delivered a petition signed by more than 350,000 supporters urging officials to allow their son to be taken to the United States.
Image: By sjiong – http://www.flickr.com/photos/sjiong/109817932/, CC BY-SA 2.0, https://commons.wikimedia.org/w/index.php?curid=6380215
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Tags: allocation, benefits, bioethics, charlie gard, clinical care, decision making, doctor, health, hospital, intervention, parent, research, resources, risks, suffering, UK
Source: Bioethics Bulletin by the Berman Institute of Bioethics.
The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.