Guest Post by Nils Hoppe
Re JS (Disposal of Body)  EWHC 2859 (Fam)
This unusual and sad case concerns a court application by a 14 year old girl, JS. In 2015 she was diagnosed with a rare form of cancer which proved terminal and, at the time of her application, she was receiving palliative care as an in-patient at a hospital. The other parties involved in the application were JS’s parents, who were acrimoniously divorced. JS had no direct contact with her father after 2008.
Knowing that she would soon die, JS carried out online research into commercial cryogenic preservation techniques, defined in the judgment as “the freezing of a dead body in the hope that resuscitation and cure may be possible in the distant future”. Such techniques are not uncontroversial, being regarded with scepticism by the majority of the medical and scientific community. They are also not cheap: the judgment describes the costs associated with the basic cryopreservation package as being in the region of £37,000, or, as Mr Justice Peter Jackson put it, “about ten times as much as an average funeral”.
Of most significance to the court application was the fact that the proposed procedure required the cooperation of the hospital in which JS was a patient. This concern was described in the following terms by the judge:
The body must be prepared within a very short time of death, ideally within minutes and at most within a few hours. Arrangements then have to be made for it to be transported by a registered funeral director to the premises in the United States where it is to be stored. These bridging arrangements are offered in the UK for payment by a voluntary non-profit organisation of cryonics enthusiasts, who are not medically trained. Evidently, where the subject dies in hospital, the cooperation of the hospital is necessary if the body is to be prepared by the volunteers. This situation gives rise to serious legal and ethical issues for the hospital trust, which has to act within the law and has duties to its other patients and to its staff. (at paragraph 12)
JS, described as bright, intelligent and articulate, decided that she wanted her body to be cryopreserved after her death. Her mother supported this wish: her father did not initially, though his views changed. By the time the matter went to court, JS’s father was prepared to agree to what she wanted, subject to certain conditions, including that he be permitted to see her body after her death (which was objectionable to JS), and that he not be financially liable for the cryopreservation process.
The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.