Fordham University Center for Ethics Education Director and Marie Ward Doty University Chair in Ethics Dr. Celia B. Fisher gave the keynote address this morning at an Office for Human Research Protections (OHRP) conference, entitled “Vulnerable, Marginalized and At-Risk Participants in Research.”
In this address, Fisher describes her innovative approach to giving vulnerable adolescents and their families a voice in ensuring the responsible conduct of research. Her work illuminates the importance of fitting research ethics protections to the real world lives of LGBT teens, pediatric cancer patients, and ethnic minority youth in ways that reflect their values and merit their trust.
The OHRP conference entitled “21st Century Research: What You Need to Know About Vulnerable Populations, Emerging Designs, Technology, and More,” consisted of a Forum Workshop on April 6th and a Forum Conference on April 7th. The Forum Workshop was designed to help conference participants interpret and apply the U.S. federal regulations and policies on human research protections.
In addition to Fisher’s keynote, representatives of OHRP were on site to answer questions, explain the HHS regulatory requirements, and provide news and policy updates about the Notice of Proposed Rule Making (NPRM).
For more information, download Fisher’s OHRP keynote address here.
The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.