Continuing our summer roundups, today we are highlighting a second set of essays from our Inhabitable Worlds series, brought to us by editors Michele Friedner and Emily Cohen. Inhabitable Worlds is a series that examines the theoretical tools and approaches that scholars bring to the study of disability in the social sciences and humanities.
“The above-mentioned strategic use of the certificates implies that governmental regulations as to whom is entitled to travel in the compartments often do not suffice and are sometimes overruled as the space is governed by the passengers themselves. In these train compartments assigned to disabled people, informal rules for use of space are created, reproduced and challenged. The diversity of the passenger body leads to the production of hierarchies when negotiating (and arguing about) who can enter the compartments and who can not, who can sit and who should stand, and where they should sit or stand (in the compartment or near the doors). These hierarchies are general but not overpowering directives with regard to entitlement to space in the compartments, produced by diverse commuters. There is a tension between formal and informal rules as the produced hierarchies are mediated, but not dominated by the power of medical and disability certificates.” —Annelies Kusters
“Living with an illness often conjures discourses of a losing battle and suffering. What is less evident in the literature is how people can live with an illness, rather than despite it.
The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.