Bioethics News

The bioethics of genetic diversity

The latest issue of the American Journal of Bioethics examines the topic of new reproductive technologies and genetic diversity. A series of articles discuss the ethical issues surrounding the protection of genetic variation in a population.

Monash bioethicist Robert Sparrow’s ‘Imposing Genetic Diversity’ – the target article for the discussion – considers the radical implications of arguments against the new eugenics that focus on the importance of diversity. 

Sparrow, though himself no friend of eugenic logic, questions whether arguments about the value of diversity could potentially have authoritarian implications. If we desire to conserve genetic variation and naturally occurring instances of disability in our world, then why shouldn’t we protect disability and – in extreme cases where disability begins to disappear – impose disability on populations.  

“Diversity clearly makes the world a more interesting place and the idea that we should conserve genetic diversity is therefore tempting. Yet when we imagine imposing genetic diversity to secure this same good, its value is revealed as elusive, especially if we concede that it must be achieved at the cost of the well-being of some individuals whose existence has been used to produce a benefit enjoyed mainly by others.”

In a response to Sparrow’s article, bioethicist and disabilities advocate Rosemarie Garland-Thompson argues that the very project of trying to design “the future people we want” (viz. the use of reproductive technologies to produce the best possible babies) is inherently problematic, as we do not have the power to predict all the contingencies of the future world. Hence we should neither impose disability nor attempt to eradicate it:

“All present actions shape the future, but we cannot predict or control all of the outcomes.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.