Bioethics Blogs

Research Ethics Reconsidered in the Context of Community-Engaged Research

Due to PRIM&R’s unique position in the research ethics field, we are often approached by organizations and investigators who wish to tap into the PRIM&R community for their specialized skills, unique perspective, and dedication to conducting research with human subjects to the highest standards. This post is one such example of that. Nancy Shore, PhD, senior consultant at Community-Campus Partnerships for Health (CCPH) and principal investigator, and her study team would like the assistance of the PRIM&R community in furthering their research, which is co-sponsored by CCPH and the University of New England (UNE) with support from a grant from the Greenwall Foundation. Read on to see how you can help.

The trend toward community-engaged research enlarges the role of the community beyond an individual institutional review board (IRB) member, or participants in a research study. Specifically, community-engaged research (CEnR) represents a shift away from traditional research approaches that identified individual community members as research subjects to engaging with community members and the organizations that represent or serve them as research partners and participants.

Additionally, some researchers and certain communities have grown dissatisfied with the regulations designed to protect the rights and welfare of individual study participants, arguing that such regulations do not sufficiently consider these communities’ interests.

These developments require an updated regulatory framework, and therefore, CCPH and UNE invite you to share feedback on their proposed revisions to the Belmont Report and Department of Health and Human Services (HHS) research ethics regulations.

The genesis of these changes stem from the team’s earlier work, which found that the Belmont Report does not cover a wide range of ethical issues that arise in CEnR.

The views, opinions and positions expressed by these authors and blogs are theirs and do not necessarily represent that of the Bioethics Research Library and Kennedy Institute of Ethics or Georgetown University.