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Digital Collection Project

With National Human Genome Research Institute support, NIREHG offers the following groups of full-text materials to support your research.

NIREHG is digitizing selected monographs related to ethical, legal and social implications of genetics research and clinical practice. The following books are now online:

• United States. Congress. Office of Technology Assessment. THE HUMAN GENOME PROJECT AND PATENTING DNA SEQUENCES. Unpublished, draft document. April 1994. 370 p.
  
• United States. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. SPLICING LIFE: A REPORT ON THE SOCIAL AND ETHICAL ISSUES OF GENETIC ENGINEERING WITH HUMAN BEINGS. Washington, DC: President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research, 1982. 126 p.
  
• United States. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research. SCREENING AND COUNSELING FOR GENETIC CONDITIONS: A REPORT ON THE ETHICAL, SOCIAL, AND LEGAL IMPLICATIONS OF GENETIC SCREENING, COUNSELING, AND EDUCATION PROGRAMS Washington, DC: U.S. Government Printing Office [GPO], 1983. 122 p.

Through a cooperative agreement with Duke University's Institute for Genome Sciences and Policy, North Carolina, the following items have been converted to machine readable format.

• Eugenics Record Office. BULLETIN No. 10 A: Report of the Committee to Study and to Report on the Best Practical Means of Cutting Off the Defective Germ-Plasm in the American Population. I. THE SCOPE OF THE COMMITTEE'S WORK, by HARRY H. LAUGHLIN, Secretary of the Committee, Cold Spring Harbor, Long Island, New York, February, 1914.
• Eugenics Record Office. BULLETIN No. 10B: Report of the Committee to Study and to Report on the Best Practical Means of Cutting Off the Defective Germ-Plasm in the American Population. II. THE LEGAL, LEGISLATIVE AND ADMINISTRATIVE ASPECTS OF STERILIZATION, by HARRY H. LAUGHLIN, Secretary of the Committee, Cold Spring Harbor, Long Island, New York, February, 1914.

The "Genetics Bookshelves" feature a 'virtual bookshelf' of monographs found fulltext at either academic or governmental websites.

• Government Reports on Genetic Research and Practice


• Academic Reports on Genetic Research and Practice

Through a cooperative agreement with the Hastings Center of Garrison, New York, articles from its journals, the Hastings Center Report and IRB: Ethics and Human Research are being converted to machine readable format. This QuickBib provides an up-to-date list of such articles.

A related resource at the Kennedy Institute is the National Bioethics Advisory Commission digital archive. This QuickBib lists NBAC reports relevant to genetics.

Citations in the GenETHX database link to thousands of items available at other websites. Remember to check the box next to "Search only content available on-line" before submitting your search request from any of the three search screens. This sample QuickBib lists all books on genetics in the GenETHX database.

These services are funded by a grant from the National Human Genome Research Institute, a contract with the National Library of Medicine, and other public and private sources.

Materials on this site are freely available to individual researchers. Any redistribution or commercial use requires written permission of the Institute.

"Genetics Bookshelves" and "QuickBibs" are automatically refreshed whenever the entire database is updated semimonthly.

Last updated: March 2008